{"id":14073,"date":"2024-01-24T14:26:00","date_gmt":"2024-01-24T13:26:00","guid":{"rendered":"https:\/\/voxvigor.se\/?p=14073"},"modified":"2024-03-14T18:06:55","modified_gmt":"2024-03-14T17:06:55","slug":"vi-patienter-ar-inte-hjalplosa-vi-ar-tillgangar-i-samhallet","status":"publish","type":"post","link":"https:\/\/voxvigor.se\/bricks-staging\/vi-patienter-ar-inte-hjalplosa-vi-ar-tillgangar-i-samhallet\/","title":{"rendered":"Vi patienter \u00e4r inte hj\u00e4lpl\u00f6sa, vi \u00e4r tillg\u00e5ngar i samh\u00e4llet"},"content":{"rendered":"\n

Denna text har tidigare publicerats p\u00e5 RSMH-bloggen<\/a>.<\/strong><\/p>\n\n\n\n

Jag vill f\u00f6rklara varf\u00f6r patientperspektivet beh\u00f6vs och varf\u00f6r vi patienter beh\u00f6vs i v\u00e5rdens jobb och i samh\u00e4llet. Varf\u00f6r vi patienter beh\u00f6vs i debatten och varf\u00f6r vi beh\u00f6ver bli tillfr\u00e5gade. Varf\u00f6r vi inte ska vara avundsjuka p\u00e5 den som orkar ta sig igenom eller p\u00e5 att andra med funktionshinder kanske blir lyssnade p\u00e5<\/strong>? Eller f\u00f6r att en del kan klara sej bra inom v\u00e5rd och\/eller samh\u00e4lle trots att de har funktionshinder. <\/strong><\/p>\n\n\n\n

Jag vet inte hur det \u00e4r med er, men livet \u00e4r inte som att glida fram p\u00e5 en r\u00e4kmacka direkt. Har man funktionshinder k\u00e4nns det stundtals mer som att g\u00e5 p\u00e5 taggtr\u00e5d. Men det kanske bara \u00e4r jag? I alla fall jag \u00e4r med om, eller h\u00f6r talas om, funkofobi. Jag blir behandlad m\u00e4rkligt p\u00e5 grund av mitt funktionshinder varje vecka. Patientperspektivet och det egenupplevda perspektivet beh\u00f6vs! Men det kanske bara \u00e4r jag?<\/p>\n\n\n\n

Patientperspektivet beh\u00f6vs:<\/h2>\n\n\n\n
    \n
  • s\u00e5 l\u00e4nge som det finns l\u00e4kare som tar beslut om att barn med funktionshinder lider i sin grunddiagnos och d\u00e4rf\u00f6r v\u00e4ljer att inte s\u00e4tta in behandling n\u00e4r barnet kommit in p\u00e5 sjukhus vid infektion eller annan skada. Risken \u00e4r att barnet avlider och d\u00e4rf\u00f6r beh\u00f6vs patientperspektivet och v\u00e5r kompetens<\/li>\n\n\n\n
  • n\u00e4r m\u00e4nniskor som har funktionshinder inte f\u00e5r jobb som handl\u00e4ggare inom socialtj\u00e4nsten, med motiveringen att det skulle inte g\u00e5 med tanke p\u00e5 funktionshindret. D\u00e5 beh\u00f6vs funktionsperspektivet!<\/li>\n\n\n\n
  • n\u00e4r personal inom skolan tror att man f\u00e5r st\u00f6d fr\u00e5n Socialtj\u00e4nsten bara man ans\u00f6ker om det och inte vet att det \u00e4r en kamp och \u00f6verklaganden \u00e4nda upp i r\u00e4tten att f\u00e5 igenom ans\u00f6kningar. D\u00e5 beh\u00f6vs brukarperspektivet och vi som visar p\u00e5 bristerna. F\u00f6r att det ska kunna bli n\u00e5gon f\u00f6r\u00e4ndring?<\/li>\n\n\n\n
  • n\u00e4r patienter f\u00e5r kommentar fr\u00e5n l\u00e4kare som att du \u00e4r ju \u00e4nd\u00e5 inte ute i arbetslivet, s\u00e5 dej beh\u00f6ver vi inte behandla. D\u00e5 beh\u00f6vs brukarperspektivet och vi som p\u00e5minner om att vi ska r\u00e4knas med!<\/li>\n\n\n\n
  • n\u00e4r f\u00f6ruts\u00e4ttningarna f\u00f6r att kunna jobba efter sjukskrivning \u00e4r som att g\u00e5 vilse i en sn\u00e5rig skog n\u00e4r man har med F\u00f6rs\u00e4kringskassan och v\u00e5rden att g\u00f6ra beh\u00f6vs v\u00e5r kompetens och v\u00e5ra erfarenheter! <\/li>\n<\/ul>\n\n\n\n

    ”Vi \u00e4r inte hj\u00e4lpl\u00f6sa miffon”<\/h2>\n\n\n\n

    S\u00e5 l\u00e5t oss se verkligheten f\u00f6r vad den \u00e4r, som en p\u00e5minnelse till oss. Det finns ett helt hav med funkofobi och s\u00e4rbehandling d\u00e4r ute som vi beh\u00f6ver k\u00e4mpa f\u00f6r att f\u00f6r\u00e4ndra och det r\u00e4cker f\u00f6r oss alla!! Ta vara p\u00e5 v\u00e5r levda kompetens och v\u00e5r vilja att ha ett socialt h\u00e5llbart samh\u00e4lle. G\u00f6r s\u00e5 att vi g\u00e5r fr\u00e5n att vara en grupp stackars funktionshindrade till m\u00e4nniskor bakom funktionshinder som har b\u00e5de bra och d\u00e5liga sidor, men vi \u00e4r inte hj\u00e4lpl\u00f6sa miffon! Vi \u00e4r tillg\u00e5ngar!\u00a0 Det \u00e4r bara att kavla upp \u00e4rmarna och b\u00f6rja!<\/p>\n\n\n\n

    Text<\/strong>: Maria Nilsson<\/p>\n\n\n\n

    Foto<\/strong>: Privat (Maria Nilssons portr\u00e4tt) och Stefan_Schranz\/Pixabay (sjukhusbild).<\/p>\n","protected":false},"excerpt":{"rendered":"

    Denna text har tidigare publicerats p\u00e5 RSMH-bloggen. Jag vill f\u00f6rklara varf\u00f6r patientperspektivet beh\u00f6vs och varf\u00f6r vi patienter beh\u00f6vs i v\u00e5rdens jobb och i samh\u00e4llet. Varf\u00f6r vi patienter beh\u00f6vs i debatten […]<\/p>\n","protected":false},"author":6,"featured_media":15952,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[148],"tags":[],"acf":[],"yoast_head":"\nVi patienter \u00e4r inte hj\u00e4lpl\u00f6sa, vi \u00e4r tillg\u00e5ngar i samh\u00e4llet - Bricks staging<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/voxvigor.se\/bricks-staging\/vi-patienter-ar-inte-hjalplosa-vi-ar-tillgangar-i-samhallet\/\" \/>\n<meta property=\"og:locale\" content=\"sv_SE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Vi patienter \u00e4r inte hj\u00e4lpl\u00f6sa, vi \u00e4r tillg\u00e5ngar i samh\u00e4llet - Bricks staging\" \/>\n<meta property=\"og:description\" content=\"Denna text har tidigare publicerats p\u00e5 RSMH-bloggen. Jag vill f\u00f6rklara varf\u00f6r patientperspektivet beh\u00f6vs och varf\u00f6r vi patienter beh\u00f6vs i v\u00e5rdens jobb och i samh\u00e4llet. 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