{"id":10945,"date":"2023-02-14T09:03:00","date_gmt":"2023-02-14T08:03:00","guid":{"rendered":"https:\/\/voxvigor.se\/?p=10945"},"modified":"2023-02-14T09:03:00","modified_gmt":"2023-02-14T08:03:00","slug":"sa-ar-det-att-leva-med-hjarntrotthet","status":"publish","type":"post","link":"https:\/\/voxvigor.se\/bricks-staging\/sa-ar-det-att-leva-med-hjarntrotthet\/","title":{"rendered":"S\u00e5 \u00e4r det att leva med hj\u00e4rntr\u00f6tthet"},"content":{"rendered":"\n

Den som har hj\u00e4rntr\u00f6tthet f\u00e5r k\u00e4mpa, b\u00e5de med sin egen ork och med of\u00f6rst\u00e5else fr\u00e5n omv\u00e4rlden. Marina S\u00e5ng\u00e4ngel skriver utifr\u00e5n egna erfarenheter.<\/strong><\/p>\n\n\n\n

Hj\u00e4rntr\u00f6tthet \u00e4r ett tillst\u00e5nd som \u00e4r f\u00f6rknippat med mycket skepsis och f\u00f6rd\u00f6manden fr\u00e5n v\u00e5rden. Troligen f\u00f6r att det i m\u00e5nga fall inte \u00e4r ett tillst\u00e5nd som kan visas genom prover eller r\u00f6ntgen. D\u00e5 \u00e4r m\u00e5nga av \u00e5sikten att symptomen inte finns och patienten betraktas<\/s>s som lat, oavsett hur patienten sj\u00e4lv \u00e4r motiverad att komma ur detta.<\/p>\n\n\n\n

Mitt liv handlar mycket om hur jag hanterar hj\u00e4rntr\u00f6ttheten. Jag m\u00e5ste hela tiden hitta strategier f\u00f6r att klara min vardag. Tyv\u00e4rr r\u00e4cker orken ofta inte till och f\u00f6tterna fylls med betong och det \u00e4r \u00e4ven jobbigt att f\u00e5 sammanhang i samtal. Jag bara fylls av en overklighetsk\u00e4nsla och andra ser p\u00e5 mig att jag inte riktigt \u00e4r med.  <\/p>\n\n\n\n

Jag beh\u00f6ver d\u00e5 g\u00e5 undan och helst l\u00e4gga mig. Minimalt med stimuli \u00e4r det som g\u00e4ller d\u00e5 eftersom jag blir hyperk\u00e4nslig f\u00f6r ljud.  <\/p>\n\n\n\n

Risken \u00e4r ocks\u00e5 att jag tappar balansen och ramlar och skadar mig i detta l\u00e4ge \u00e4ven om jag har hj\u00e4lp av rullatorn. Benen lyder liksom inte. <\/p>\n\n\n\n

Om jag \u00e4r p\u00e5 promenad n\u00e4r hj\u00e4rntr\u00f6ttheten tar \u00f6ver \u00e4r jag helt fokuserad p\u00e5 att lyfta f\u00f6tterna utan att snubbla. All energi jag har kvar \u00e4gnar jag \u00e5t just att ta mig hem utan att f\u00f6tterna ska snava \u00f6ver varandra. <\/p>\n\n\n\n

Ljud kan vara extremt jobbiga<\/strong><\/h2>\n\n\n\n

En sak som triggar min hj\u00e4rntr\u00f6tthet \u00e4r ljud. Trafikljud \u00e4r extremt jobbiga, s\u00e5 jag har l\u00e4rt mig att om jag ska g\u00e5 utomhus n\u00e5gonstans har jag alltid med h\u00f6rselk\u00e5porna.  <\/p>\n\n\n\n

I L\u00e4kartidningen nr 13-14 2022<\/a> beskrivs detta tillst\u00e5nd som mental\/kognitiv tr\u00f6tthet eller fatigue.  <\/p>\n\n\n\n

Tillst\u00e5ndet inneb\u00e4r en mycket stor begr\u00e4nsning vad g\u00e4ller allt i livet. Minnet p\u00e5verkas till stor grad. Bara att delta i ett samtal kan visa sig vara \u201cf\u00f6r mycket\u201d. <\/p>\n\n\n\n

Hj\u00e4rntr\u00f6tthet f\u00f6rekommer ofta vid sjukdom eller skada i nervsystemet men m\u00e5nga som har npf \u00e4r ocks\u00e5 drabbade.  <\/p>\n\n\n\n

\u00d6versk\u00f6<\/strong>l<\/strong>js av intryck<\/strong><\/h2>\n\n\n\n

Har man nedsatt filterfunktion och inte kan rensa bort on\u00f6diga intryck blir hj\u00e4rnan \u00f6verbelastad. I dagens samh\u00e4lle \u00f6versk\u00f6ljs man av intryck fr\u00e5n alla h\u00e5ll och ges s\u00e4llan tillf\u00e4lle f\u00f6r \u00e5terh\u00e4mtning. D\u00e4rf\u00f6r drabbas fler och fler. Stress drabbar alla. Men n\u00e4r man aldrig f\u00e5r chansen att varva ned \u00e4ven om det beh\u00f6vs \u00e4r min teori att hj\u00e4rnan till slut hamnar i en f\u00f6rsvarsposition och blir tvungen att skydda sig. Till slut blir v\u00e4l resultatet att den \u201cst\u00e4nger av\u201d och tvingar den drabbade till vila. <\/p>\n\n\n\n

Den drabbade blir tvungen att inr\u00e4tta sitt liv efter dagsformen, mer eller mindre, och i dagens samh\u00e4lle finns det inte utrymme f\u00f6r detta. Man hamnar i kl\u00e4m, blir missf\u00f6rst\u00e5dd och hamnar d\u00e4rmed i riskzonen f\u00f6r psykisk oh\u00e4lsa. Det beror helt enkelt p\u00e5 att arbetsgivare, skola, f\u00f6rs\u00e4kringskassa, med mera saknar f\u00f6rst\u00e5else. Det finns inga s\u00e4tt att s\u00e4kerst\u00e4lla diagnosen vilket \u00e4r ett stort dilemma som p\u00e5 sikt m\u00e5ste l\u00f6sas. <\/p>\n\n\n\n

Det \u00e4r vila som g\u00e4ller<\/h2>\n\n\n\n

Viss forskning finns kring att energioms\u00e4ttningen i hj\u00e4rnan inte funkar som den ska och st\u00f6rningar i dopaminet kan ocks\u00e5 spela viss roll. <\/p>\n\n\n\n

Forskarna har inte kommit fram till n\u00e5got botemedel, men menar att det syns\u00e4tt som fanns f\u00f6rut, att man ska anstr\u00e4nga sig mer f\u00f6r att bota \u00e4r helt fel. Annars \u00e4r detta en g\u00e4ngse \u00e5sikt som jag som patient ofta f\u00e5r h\u00f6ra. Det \u00e4r VILA som g\u00e4ller! <\/p>\n\n\n\n

Aktivitet m\u00e5ste ske i den m\u00e5n orken r\u00e4cker till. <\/p>\n\n\n\n

Om man \u00e4r drabbad av hj\u00e4rntr\u00f6tthet \u00e4r mina r\u00e5d att ber\u00e4tta f\u00f6r den n\u00e4rmaste omgivningen om hur man har det, \u00e4ven om man till en b\u00f6rjan kan bli bem\u00f6tt med skepsis. Med tiden kommer de att f\u00f6rst\u00e5. V\u00e5rden har inte s\u00e4rskilt mycket att erbjuda om inte hj\u00e4rntr\u00f6ttheten \u00e4r en f\u00f6ljd av en synlig skada. Lita p\u00e5 dig sj\u00e4lv n\u00e4r du k\u00e4nner att du har en jobbig dag och beh\u00f6ver vila. Jag vet att det \u00e4r l\u00e4ttare sagt \u00e4n gjort eftersom inte alla har lika l\u00e4tt som jag att bara kunna st\u00e4lla in allt f\u00f6r att vila men f\u00f6rs\u00f6k att inte straffa dig sj\u00e4lv f\u00f6r hj\u00e4rntr\u00f6ttheten f\u00f6r d\u00e5 riskerar den att bli kronisk. <\/p>\n\n\n\n

\"Glad
Marina S\u00e5ng\u00e4ngel. Foto: Privat.<\/figcaption><\/figure>\n\n\n\n

Text: Marina S\u00e5ng\u00e4ngel<\/em><\/p>\n\n\n\n

Foto: Gerd Altmann\/Pixabay<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

Den som har hj\u00e4rntr\u00f6tthet f\u00e5r k\u00e4mpa, b\u00e5de med sin egen ork och med of\u00f6rst\u00e5else fr\u00e5n omv\u00e4rlden. Marina S\u00e5ng\u00e4ngel skriver utifr\u00e5n egna erfarenheter. Hj\u00e4rntr\u00f6tthet \u00e4r ett tillst\u00e5nd som \u00e4r f\u00f6rknippat med […]<\/p>\n","protected":false},"author":6,"featured_media":10994,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[148,4],"tags":[],"acf":[],"yoast_head":"\nS\u00e5 \u00e4r det att leva med hj\u00e4rntr\u00f6tthet - Bricks staging<\/title>\n<meta name=\"description\" content=\"Den som har hj\u00e4rntr\u00f6tthet f\u00e5r k\u00e4mpa, b\u00e5de med sin egen ork och med of\u00f6rst\u00e5else fr\u00e5n omv\u00e4rlden. 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